I went back today and ready every single blog post. Heavyyyy. Ugh. Sorry about that. It was kind of creepy, actually. All of these things that I wrote to Daddy about his cancer- I had forgotten that I had even said them- and now I'm repeating them about my own cancer. I even mentioned the song that is now one of my favorites- Martina McBride's, "I'm gonna love you through it." It seriously made me mad. Like I'm experiencing some kind of divine test- or joke. I know that my job is to show my girls how this is supposed to be done, just like Daddy showed me. I know I can do it, but ya'll. . I really don't want to.
Most of my friends know that what I need most is to laugh. To stay busy with other things besides cancer. Maybe do a couple things that are bad for me and say, "WHAT? Afraid I might get cancer or something?" When one of them complains about something, I like to make them uncomfortable by saying, "trade ya'," or "well, I have a tumor." I told someone last night that I was going to milk that part while I can since someday I won't be able to. ;-) Then I laughed because I said, "milk it," and pretty soon I won't have any boobs with which to milk anyone. The great part about all of that, though, ('that' being cancer, I guess) is that cancer makes everything else seem so freaking AWESOME.
My job was awesome before, but now it's a vacation for me. Somewhere where nobody even knows I'm sick. Somewhere I can be anyone I want to be. Somewhere where I don't have the time to cry. It's so awesome.
My friends are awesome. I've never been one to have a ton of friends. I prefer just a few close ones who really, truly know me. It took me a long time to find that, but I have it now and it is amazing. And I consider every single one of you who takes the time to read this a friend. My friends have touched my heart and made me feel so unworthy of the love they're giving me. Every message, every call, every hug- I am so, so grateful for each of them- and each of you.
My girls are so awesome. Last night they were driving each other nuts in the car and I laughed out loud at them. How awesome that they think that someones knee touching their carseat is the worst thing that has happened this week! It's already like they've forgotten that I'm sick. Of course they can't see it yet, but it gives me hope that they'll brush this off and move on. At the same time, I hope that I can teach them something they'll remember along the way.
My husband is awesome. He's been folding laundry and packing lunches. And when I tell him that my back hurts and I think it must be another tumor, he tells me it's just stress. When I tell him that I'm going to look like a freak, he tells me he didn't marry me for my boobs, that he's really more of a butt man, and that I would never look like a freak.
Exercise is so awesome. I cried in the gym this morning. You see, I've battled my weight since I was a teenager. I've lost more weight and gained it back than I can even count. I hated sweating with a passion- and I used to tell people that I would only run if I was being chased. Two years ago when J was put on blood pressure medication we decided we needed to do something. We started a fitness journey together that changed our lives. I've done things in the last two years that I NEVER thought I would make my body do. I lost 40 pounds, ran in races and began to love sweating.The gym became my second home, and I was so proud of it. I have these fleeting thoughts now that maybe I'm being punished for caring so much about something so cosmetic. On the other hand, if I weren't so strong now, I wouldn't have as much muscle to fight this bi*ch with. That's what made me cry in the gym, though. I'm going to miss it so much. And I'm afraid I'll get fat again. There, I said it. I'm afraid I'm going to be bald and fat with no boobs. Yes, I KNOW I have bigger things to worry about. Yes, I KNOW I'm fighting death. But I would rather not be bald, fat and boobless while I'm doing it. And before you say it, yes I KNOW it's only temporary and I'll get through it. That does not make it any more appealing.
Here's what I've learned that I didn't know- and you probably don't either. They have this thing called "immediate reconstruction," except that it's not really immediate. The only immediate thing is that they put, essentially, balloons in where your boobs were. They blow them up weekly to stretch your skin until you're ready for implants. In the meantime they look all lopsided and uneven. And here's the great part. Apparently, if you need chemo, "immediate reconstruction" isn't even an option. That means I would have NOTHING for several months. NOTHING. How will I even LOOK at that? Isn't that insanely vain? I know it is, but I can't help it right now because I know it's going to be a long time before I will look like something even CLOSE to normal. I am telling myself, even as I write this, that after I get through that, getting ANYthing in there will look and feel awesome for me and I'll never take my body for granted again. See, I really am trying hard to put an upside to every down.
I feel like I have to say this every time. I know that even though cancer sucks, I'm a very lucky woman. There are so many people out there with no hope for themselves or, worse yet, for their babies (by the way, September is Childhood Cancer Awareness Month- talk about a vicious monster). I never want to discount what they're experiencing or compare my pain to theirs. The fact remains, though, that however big or small our battle, our pain is our pain. Thinking about other people's battles can give us important perspective, but it doesn't fix OUR battle. I'm kind of just figuring that out. So when you say you have a cold and I say, "wanna trade?" it doesn't mean that having a cold doesn't still suck.
I named my tumor. Betty. Betty the Bi*ch, actually. Sorry for the language, but she is kind of a bi*ch. And now, even though I know she's only, like, 1 centimeter, she feels like she's the size of my fist. That's kind of a bi*chy thing to do if you ask me. And what kind of bi*ch sets up camp in your body without asking and then, when you evict her, takes your freaking boobs with her? So you see, I think the name fits. It helps me stay mad at her as I sit here and DREAD- I mean full on sweating, heart pounding, can't eat (which is RARE for me)- DREAD tomorrow. Are they going to tell me more unexpected things? Are they going to repeatedly shake their heads when I say, for the 10th time, "YES, I'm 34 and NO there is absolutely no history of breast cancer in my family. Ever. Anywhere. Nobody." Well, my girls will have a much different answer, won't they. I'm praying that the advances in medicine are so great over the next decade that they won't have to fear it as much as we do. But right now it just reiterates what I'm already feeling. I'm 34 and I have a disease that nobody I know has ever had. They even told me not to bother calling the American Cancer Society support hotline because most of the women are retirees and "probably wouldn't be able to relate to my situation." But I know there are more "me's" out there, and I'm going to find them. As soon as this bi*ch hits the road.
Tuesday, September 3, 2013
Monday, September 2, 2013
365 days
Well, Daddy, this is one letter I never pictured writing. Actually, I had avoided writing anything at all since you left. I like to come back and read your letters, and I kept telling myself that I should tell you about all of the ways the girls remember you. They look out the window and wave at the sky in the morning to tell you hello. When we had a picnic last week, the little ones did their new dance while they looked at the sky and said they were "showing Papa because he likes our dances." L calls you on her "phone" all the time to talk about the games you used to be able to play with her. K is so quiet. I can't get her to say much about you, but I know that's how she protects herself from her sadness.
This week you have been gone one year. 365 days without touching you or seeing your face. 365 days with no cancer in our lives. 365 days of stories that I didn't get to tell you. 365 days of memories you missed out on. 365 days to start to heal.
Then I went to the doctor.
In the midst of this story, let me tell you about all of the amazing ways you played a part. I dream about you pretty frequently. I get frustrated because you are always sick in my dreams. They are so realistic that I can't enjoy seeing and touching you again. A few months ago, I had 3 dreams in the course of about 2 months in which you and I both had cancer. One time I specifically remember telling you that I didn't want to die, and you told me that I wouldn't, but I didn't believe you. Finally, after the third dream and reading a story about a young mother who died of cancer at 38, I decided I must go to the doctor- just to make myself feel better.
I haven't been to the doctor in three years. It's easy to tell me how stupid that was- you're right. But I had just had a baby, so I figured I was good for a year. Then you got sick and I cancelled it last summer because I was too busy, and I figured it had only been two years. Then the dreams came, and I realized it had been three years, so I got the message- from you, the universe, God, whoever- and made an appointment in late June.
I went in on that day two weeks ago without even a second thought. I was excited to see my midwife, whom I hadn't seen since L was born. We talked about the girls, you, vacations, just life. And then she stopped and looked in my eyes and said, "do you feel that?" I realized that she kept touching the same spot. And I did feel it. She said, "It's probably nothing, but I am concerned enough that I want you to get it checked." I think I asked her if she was kidding. She wasn't.
While I waited for the next appointment, it was other people's concern that got me worried. I kept telling myself that we were all overreacting and we were going to feel so stupid when it was nothing. So we went to the follow-up- just to make ourselves feel better.
When you were sick and they made us go to that awful family meeting, I had this overwhelming urge to grab your hand and run. Just run. Because if they couldn't tell us, then we didn't have to know. We could just live. I felt that again as I was walking into the clinic. I felt the need to just run. If I didn't go, they couldn't tell me anything. After all, I've never been this healthy in my life so I'm probably just going through all of this expensive bullshit for nothing anyway.
Of course I didn't run. I didn't even run when they told me they needed "more pictures." I didn't run when they wouldn't say anything to me. I didn't run when they brought us into the quiet room with watercolor paintings and kleenex on the table. I didn't run when two doctors came in instead of one. I didn't run when they gave me a 50/50 chance of cancer. I didn't even run when they told me I had to come back right away for more tests. After all, I knew I was going to feel stupid when it was nothing. So I would go back for more tests- just to make myself feel better.
They did the tests and wouldn't tell me anything. They spoke in generalities and hypotheticals which made me so angry. They told me to sit and wait. Maybe 2 days, maybe 7, who knows. I asked them to call me as soon as they knew. I told them I was prepared.
I wasn't prepared.
They called at 1:20 on August 28th. My midwife was out, so someone else had to call. "Angela, are you at work?"
"Yes, but it's okay."
"Angela, are you alone?"
"Yes, but I'm okay."
"I'm so sorry, but it looks like you have cancer. It's what's called Invasive Ductal Carcinoma. We think it's a Stage 2. I'm sorry, but I'm not an expert so I can't really tell you more than that right now. The doctor can call you later. I'm so sorry."
I cried until I realized that she was just going to sit on the phone feeling sorry for me until I quit. So I quit long enough to convince her I was fine. I was thankful to have a sound proof office. On the way home, I found a friend who fought through the same thing two years ago. She let me ask anything I wanted. All I could think was, "what's going to be the worst part?"
"Pretty much everything for the next year is going to suck."
But I could look at her and see that there is an end. Or a new beginning. Or both. Someday maybe I would have trouble remembering this moment and the horrible depth of fear I was feeling.
The doctor called while I was on my way home to tell me that I could expect a mastectomy and probably four rounds of chemo. And I should know I would lose my hair. Thanks- I hadn't figured that one out already.
I drove really slowly because I wanted J to have as much time as possible living in normalcy before I told him. I thought about staying away for hours so he could be mad at me for being late instead of having to think about what was actually happening to our life. I remember walking into the house and the girls running up to me screaming and grabbing my legs like any other day. I felt so guilty for what they are undoubtedly going to see and experience over the next two years. Then I saw him, and all I had to do was nod my head.
It was a very long night.
I waited a few days to talk to the girls and to Mom. As soon as I asked the girls if they had heard of cancer, Claire said, "that's what Papa had." I explained to them that you can get cancer anywhere, and that not everyone dies. I tried to laugh about what was going to happen to my body so that they wouldn't be scared. They were still scared. The little girls kept asking me if I was going to die and go to heaven. They don't want me to leave them to go to the hospital. They don't want people to see me "with no hair on." But we got through that together. And you would be so happy to see how amazing your son has been. He is there for me every step of the way- taking care of Mom and me. He's brave and strong- just like you.
You know, Daddy, many people have mentioned how sad it is that this is the one year anniversary of you leaving, but to me it's not all sad. I was so scared, so angry when I found out, but I was also ready to fight. I saw you fight more valiantly than any person could imagine. You fought a monster that you could NOT beat- just to show me how it was done. You taught me how to do this, Daddy. You gave me a reason not to have a pity party- because I have a monster that I CAN beat. Remember that day we walked into the chemo room for the first time and we were horrified and scared to death? Well, I've been there with you, so when I do it this time, the monster has a name and I know the end game. Do you see, Daddy? I know why you had to go now. You had to prepare me for this fight. And even in my really, really dark moments when I think about the what-ifs, I am less scared because I know that my Daddy is there waiting for me.
Wednesday I will spend all day in the hospital. I have gained a new appreciation for what you must have experienced. I feel like a science experiment. All of the questions and the tests and the needles. I'll feel mad and scared and sick- and I'll feel like I really want to run away. But then it will be over and I'll go home and try to be Angela again and not the 34-year-old science experiment with a random case of cancer.
So thank you, Daddy. Thank you for showing me what to do. Thank you for holding my hand- in life and in death. I want you to know that God has blessed me with some seriously AMAZING people who will hold my hand now that you can't.
http://www.youtube.com/watch?v=4ufq8iMYvL0
This week you have been gone one year. 365 days without touching you or seeing your face. 365 days with no cancer in our lives. 365 days of stories that I didn't get to tell you. 365 days of memories you missed out on. 365 days to start to heal.
Then I went to the doctor.
In the midst of this story, let me tell you about all of the amazing ways you played a part. I dream about you pretty frequently. I get frustrated because you are always sick in my dreams. They are so realistic that I can't enjoy seeing and touching you again. A few months ago, I had 3 dreams in the course of about 2 months in which you and I both had cancer. One time I specifically remember telling you that I didn't want to die, and you told me that I wouldn't, but I didn't believe you. Finally, after the third dream and reading a story about a young mother who died of cancer at 38, I decided I must go to the doctor- just to make myself feel better.
I haven't been to the doctor in three years. It's easy to tell me how stupid that was- you're right. But I had just had a baby, so I figured I was good for a year. Then you got sick and I cancelled it last summer because I was too busy, and I figured it had only been two years. Then the dreams came, and I realized it had been three years, so I got the message- from you, the universe, God, whoever- and made an appointment in late June.
I went in on that day two weeks ago without even a second thought. I was excited to see my midwife, whom I hadn't seen since L was born. We talked about the girls, you, vacations, just life. And then she stopped and looked in my eyes and said, "do you feel that?" I realized that she kept touching the same spot. And I did feel it. She said, "It's probably nothing, but I am concerned enough that I want you to get it checked." I think I asked her if she was kidding. She wasn't.
While I waited for the next appointment, it was other people's concern that got me worried. I kept telling myself that we were all overreacting and we were going to feel so stupid when it was nothing. So we went to the follow-up- just to make ourselves feel better.
When you were sick and they made us go to that awful family meeting, I had this overwhelming urge to grab your hand and run. Just run. Because if they couldn't tell us, then we didn't have to know. We could just live. I felt that again as I was walking into the clinic. I felt the need to just run. If I didn't go, they couldn't tell me anything. After all, I've never been this healthy in my life so I'm probably just going through all of this expensive bullshit for nothing anyway.
Of course I didn't run. I didn't even run when they told me they needed "more pictures." I didn't run when they wouldn't say anything to me. I didn't run when they brought us into the quiet room with watercolor paintings and kleenex on the table. I didn't run when two doctors came in instead of one. I didn't run when they gave me a 50/50 chance of cancer. I didn't even run when they told me I had to come back right away for more tests. After all, I knew I was going to feel stupid when it was nothing. So I would go back for more tests- just to make myself feel better.
They did the tests and wouldn't tell me anything. They spoke in generalities and hypotheticals which made me so angry. They told me to sit and wait. Maybe 2 days, maybe 7, who knows. I asked them to call me as soon as they knew. I told them I was prepared.
I wasn't prepared.
They called at 1:20 on August 28th. My midwife was out, so someone else had to call. "Angela, are you at work?"
"Yes, but it's okay."
"Angela, are you alone?"
"Yes, but I'm okay."
"I'm so sorry, but it looks like you have cancer. It's what's called Invasive Ductal Carcinoma. We think it's a Stage 2. I'm sorry, but I'm not an expert so I can't really tell you more than that right now. The doctor can call you later. I'm so sorry."
I cried until I realized that she was just going to sit on the phone feeling sorry for me until I quit. So I quit long enough to convince her I was fine. I was thankful to have a sound proof office. On the way home, I found a friend who fought through the same thing two years ago. She let me ask anything I wanted. All I could think was, "what's going to be the worst part?"
"Pretty much everything for the next year is going to suck."
But I could look at her and see that there is an end. Or a new beginning. Or both. Someday maybe I would have trouble remembering this moment and the horrible depth of fear I was feeling.
The doctor called while I was on my way home to tell me that I could expect a mastectomy and probably four rounds of chemo. And I should know I would lose my hair. Thanks- I hadn't figured that one out already.
I drove really slowly because I wanted J to have as much time as possible living in normalcy before I told him. I thought about staying away for hours so he could be mad at me for being late instead of having to think about what was actually happening to our life. I remember walking into the house and the girls running up to me screaming and grabbing my legs like any other day. I felt so guilty for what they are undoubtedly going to see and experience over the next two years. Then I saw him, and all I had to do was nod my head.
It was a very long night.
I waited a few days to talk to the girls and to Mom. As soon as I asked the girls if they had heard of cancer, Claire said, "that's what Papa had." I explained to them that you can get cancer anywhere, and that not everyone dies. I tried to laugh about what was going to happen to my body so that they wouldn't be scared. They were still scared. The little girls kept asking me if I was going to die and go to heaven. They don't want me to leave them to go to the hospital. They don't want people to see me "with no hair on." But we got through that together. And you would be so happy to see how amazing your son has been. He is there for me every step of the way- taking care of Mom and me. He's brave and strong- just like you.
You know, Daddy, many people have mentioned how sad it is that this is the one year anniversary of you leaving, but to me it's not all sad. I was so scared, so angry when I found out, but I was also ready to fight. I saw you fight more valiantly than any person could imagine. You fought a monster that you could NOT beat- just to show me how it was done. You taught me how to do this, Daddy. You gave me a reason not to have a pity party- because I have a monster that I CAN beat. Remember that day we walked into the chemo room for the first time and we were horrified and scared to death? Well, I've been there with you, so when I do it this time, the monster has a name and I know the end game. Do you see, Daddy? I know why you had to go now. You had to prepare me for this fight. And even in my really, really dark moments when I think about the what-ifs, I am less scared because I know that my Daddy is there waiting for me.
Wednesday I will spend all day in the hospital. I have gained a new appreciation for what you must have experienced. I feel like a science experiment. All of the questions and the tests and the needles. I'll feel mad and scared and sick- and I'll feel like I really want to run away. But then it will be over and I'll go home and try to be Angela again and not the 34-year-old science experiment with a random case of cancer.
So thank you, Daddy. Thank you for showing me what to do. Thank you for holding my hand- in life and in death. I want you to know that God has blessed me with some seriously AMAZING people who will hold my hand now that you can't.
http://www.youtube.com/watch?v=4ufq8iMYvL0
Sunday, March 3, 2013
Happy Birthday
Half a year, Daddy. I've been writing to myself for half a year. I know this is how it will continue. I will blink my eyes and then I'll be saying 'one year. I can't believe I made it through one year.' I will go to sleep and when I wake up I'll be saying, 'five years. I've been without my Daddy for five years.' I'll take my babies to their ballet recital and when I take their picture I'll say, 'ten years- and how he loved to watch you dance. Then, inevitably, I'll watch them walk down the isle and I'll think, '20 years. And how your Papa would have loved to have been here.' And here we are- your 59th birthday.
I told you before you left that I would celebrate your birthday with the girls every year so that we could remember you the way you would want us to. You liked the idea. In my head, I had envisioned a more grand celebration- and one during which I didn't make the girls uncomfortable with my constant crying. I guess I'm just not there yet. I look at their little faces and listen to their stories about the zoo, mexican food, liver and onions, bing bong, shoulder rides and Yellow Submarine and I'm so sad that you're not here- that their memories will fade and the smiling face in the pictures with them will be nothing more than a mystery- a fairy book man from Mommy's stories. That's the reality- I know it is. You knew it was too, and I think that was what made you the most sad. I will try to keep you alive, but you are slipping away, even out of my grasp and I am holding on SO tightly.
Some days it still feels as if you've just been on a trip and I'll see you again. Just last week the phone rang in the evening and the fleeting thought came, "that must be Daddy. I haven't talked to him in a while and he's going to say 'you don't love me anymore!' Then I almost laughed because I couldn't believe that I'd forgotten that you're gone. Then some days your absence is so painful that it chokes me- takes the air from my lungs. Like today. It's hard to breathe when I look at pictures of you.
I feel blessed that I have no regrets when I see your smiling face. I think I held on to every moment with you as much as I could. I even knew the pain that was coming before you left. Yet I still can't breathe when I see your face. You come see me in my dreams. Usually you are still gone, but I can see you. You walk with me, you protect me. Last week, though, you were sick and I knew you would be leaving soon. I touched your cheek and felt it's roughness. I held your hand and felt the tough skin. I hugged you and smelled your Daddy aftershave. I said, "nobody will love me like you do, Daddy." And then I woke up. And I was right. And I will always be right. And that is why I can't breathe- because I am less loved than I was when you walked on this earth with me. Yet I am so happy because of the love you left with me. I am so proud of the strength that you taught me. I am so grateful for the joy you instilled in me.
I don't know why God didn't give you 20 more birthdays, Daddy, but I know He is merciful and holds your hand as you walk the streets of gold today. And I pray he'll continue to hold my hand as I learn to walk these streets without a Daddy to hold my hand. Stay in my heart, Daddy. Help me hold on. Happiest of birthdays to the man who gave me life and taught me how to live.
I told you before you left that I would celebrate your birthday with the girls every year so that we could remember you the way you would want us to. You liked the idea. In my head, I had envisioned a more grand celebration- and one during which I didn't make the girls uncomfortable with my constant crying. I guess I'm just not there yet. I look at their little faces and listen to their stories about the zoo, mexican food, liver and onions, bing bong, shoulder rides and Yellow Submarine and I'm so sad that you're not here- that their memories will fade and the smiling face in the pictures with them will be nothing more than a mystery- a fairy book man from Mommy's stories. That's the reality- I know it is. You knew it was too, and I think that was what made you the most sad. I will try to keep you alive, but you are slipping away, even out of my grasp and I am holding on SO tightly.
Some days it still feels as if you've just been on a trip and I'll see you again. Just last week the phone rang in the evening and the fleeting thought came, "that must be Daddy. I haven't talked to him in a while and he's going to say 'you don't love me anymore!' Then I almost laughed because I couldn't believe that I'd forgotten that you're gone. Then some days your absence is so painful that it chokes me- takes the air from my lungs. Like today. It's hard to breathe when I look at pictures of you.
I feel blessed that I have no regrets when I see your smiling face. I think I held on to every moment with you as much as I could. I even knew the pain that was coming before you left. Yet I still can't breathe when I see your face. You come see me in my dreams. Usually you are still gone, but I can see you. You walk with me, you protect me. Last week, though, you were sick and I knew you would be leaving soon. I touched your cheek and felt it's roughness. I held your hand and felt the tough skin. I hugged you and smelled your Daddy aftershave. I said, "nobody will love me like you do, Daddy." And then I woke up. And I was right. And I will always be right. And that is why I can't breathe- because I am less loved than I was when you walked on this earth with me. Yet I am so happy because of the love you left with me. I am so proud of the strength that you taught me. I am so grateful for the joy you instilled in me.
I don't know why God didn't give you 20 more birthdays, Daddy, but I know He is merciful and holds your hand as you walk the streets of gold today. And I pray he'll continue to hold my hand as I learn to walk these streets without a Daddy to hold my hand. Stay in my heart, Daddy. Help me hold on. Happiest of birthdays to the man who gave me life and taught me how to live.
Monday, December 24, 2012
Christmas where you are
Dear Daddy,
Christmas Eve is here. I knew it was coming. I'm trying so, so hard to keep the joy. The girls are so happy and excited, as if nothing is different. That makes me so happy, and yet so very sad.
My sweeet Daddy, how you loved Christmas. All those months of watching and listening to us to decide what the perfect gift would be. Then a few more months of trying REALLY hard not to tell us what it was. I could hear your voice first on Christmas morning. Your loud, silly voice when the girls bounded up the stairs to find you. It's going to be a very quiet Christmas morning here, Daddy.
Thanksgiving was harder than I thought. I ordered everything premade because I wasn't ready to pull that perfect turkey out of the oven and not have you there to start immediately picking at it and hopping around saying, "HOT, HOT, HOT!" as if you were surprised. Then after the meal you would find just the right spot on the couch, turn on the game and force us all to go in the other room because we didn't want to ruin your nap. It drove me absolutely crazy. And now I would give just about anything to have another chance. John missed you too- he told me later- it was lonely for him without you. He thinks of you every holiday when he turns on the John Wayne movies and has nobody to discuss the shooting techniques with.
I think about you every day, Daddy. Maybe every hour you cross my mind. Last weekend we watched videos of you and it was so overwhelming to hear your voice. I had avoided it for just over three months. J planned our family Christmas for the 15th, which was the anniversary of your diagnosis. We didn't talk about that elephant in the room, but we did drink too much, tell embarassing stories about you, listen to saved voicemails from you and watch all the videos we could find with you in them. J says he makes himself do it even though it hurts because it reminds him that you were real. I know just what he means. I go through my everyday life with this constant feeling that something is missing and I'm just used to the space. I have to remind myself that you were here. You were real. You were mine. It wasn't much, but you would've been happy with it because we were together and we were thinking about you.
K is amazing, Daddy. She's reading like a maniac, she's happy at school and she's just as much a cuddle bug as ever. I asked her last week why she hasn't really cried about you and said, "well, I did, but I know he's in heaven so I guess I'm just okay." The faith of a child. L gives me fits. How I wish I could call you when she's driving me absolutely nuts so you could laugh at me. She still tells me that she's The Hopper because Papa said she is. When I tell her Nene's coming she yells, "YAY! And Papa too!" It makes me so happy and breaks my heart at the same time. I tell her you're probably thinking about us and that you would be here if you could. The little Bear talks about you often. She misses you and still surprises me the most of the three of them. She has such a caring and tender heart. She has this sensitive honesty, and yet she is not pulled down by other's sadness. She will gently rub my back or leg when I cry about you and then she'll skip away humming a tune. She should be a nurse. Her joy would bless people. When the shooting happened last week in Conneticut, I wept for those poor babies and their parents. A thought crossed my mind, though, that brought me some peace. You're with them. I just know you're having a catch or tossing a football with those sweet little boys. You're playing hide-and-seek and having tea parties with those precious little girls. You're teaching them. I know you are- Jesus would want you to teach the children. You have to be the best story teller in heaven. Oh how I wished those poor parents could know that those babies would be well cared for (and that they would surely learn all the words to Yellow Submarine). You were the world's most fun Daddy and I'm thankful they have you.
We're all doing our best, Daddy. We miss you so much and make you a constant part of our lives. We learned so much from you, Daddy. In life and in death. I look at the bookmark on your computer that says "Our Blog," and I just can't give it up. I know you can't write me anymore, Daddy, but I want you to know that I write you every day in my heart. You made Christmas so perfect, and I will remember that joy always. Merry Christmas, Daddy. I love you so very much.
Christmas Eve is here. I knew it was coming. I'm trying so, so hard to keep the joy. The girls are so happy and excited, as if nothing is different. That makes me so happy, and yet so very sad.
My sweeet Daddy, how you loved Christmas. All those months of watching and listening to us to decide what the perfect gift would be. Then a few more months of trying REALLY hard not to tell us what it was. I could hear your voice first on Christmas morning. Your loud, silly voice when the girls bounded up the stairs to find you. It's going to be a very quiet Christmas morning here, Daddy.
Thanksgiving was harder than I thought. I ordered everything premade because I wasn't ready to pull that perfect turkey out of the oven and not have you there to start immediately picking at it and hopping around saying, "HOT, HOT, HOT!" as if you were surprised. Then after the meal you would find just the right spot on the couch, turn on the game and force us all to go in the other room because we didn't want to ruin your nap. It drove me absolutely crazy. And now I would give just about anything to have another chance. John missed you too- he told me later- it was lonely for him without you. He thinks of you every holiday when he turns on the John Wayne movies and has nobody to discuss the shooting techniques with. I think about you every day, Daddy. Maybe every hour you cross my mind. Last weekend we watched videos of you and it was so overwhelming to hear your voice. I had avoided it for just over three months. J planned our family Christmas for the 15th, which was the anniversary of your diagnosis. We didn't talk about that elephant in the room, but we did drink too much, tell embarassing stories about you, listen to saved voicemails from you and watch all the videos we could find with you in them. J says he makes himself do it even though it hurts because it reminds him that you were real. I know just what he means. I go through my everyday life with this constant feeling that something is missing and I'm just used to the space. I have to remind myself that you were here. You were real. You were mine. It wasn't much, but you would've been happy with it because we were together and we were thinking about you.
K is amazing, Daddy. She's reading like a maniac, she's happy at school and she's just as much a cuddle bug as ever. I asked her last week why she hasn't really cried about you and said, "well, I did, but I know he's in heaven so I guess I'm just okay." The faith of a child. L gives me fits. How I wish I could call you when she's driving me absolutely nuts so you could laugh at me. She still tells me that she's The Hopper because Papa said she is. When I tell her Nene's coming she yells, "YAY! And Papa too!" It makes me so happy and breaks my heart at the same time. I tell her you're probably thinking about us and that you would be here if you could. The little Bear talks about you often. She misses you and still surprises me the most of the three of them. She has such a caring and tender heart. She has this sensitive honesty, and yet she is not pulled down by other's sadness. She will gently rub my back or leg when I cry about you and then she'll skip away humming a tune. She should be a nurse. Her joy would bless people. When the shooting happened last week in Conneticut, I wept for those poor babies and their parents. A thought crossed my mind, though, that brought me some peace. You're with them. I just know you're having a catch or tossing a football with those sweet little boys. You're playing hide-and-seek and having tea parties with those precious little girls. You're teaching them. I know you are- Jesus would want you to teach the children. You have to be the best story teller in heaven. Oh how I wished those poor parents could know that those babies would be well cared for (and that they would surely learn all the words to Yellow Submarine). You were the world's most fun Daddy and I'm thankful they have you. We're all doing our best, Daddy. We miss you so much and make you a constant part of our lives. We learned so much from you, Daddy. In life and in death. I look at the bookmark on your computer that says "Our Blog," and I just can't give it up. I know you can't write me anymore, Daddy, but I want you to know that I write you every day in my heart. You made Christmas so perfect, and I will remember that joy always. Merry Christmas, Daddy. I love you so very much.
Sunday, October 7, 2012
Miss you
Dear Daddy,
Yesterday was one month since you left. The impact that it had on me caught me off guard. I'm not really one for anniversaries. Dates don't really bear a lot of weight- they're just a day like any other. I don't usually feel more pain or joy on an anniversary than I do on any other day. This one is different, though. I think because it forced me to face the fact that time has continued to pass, even though I feel like it has been standing still.
You probably know this from where you sit now, but everything is okay. The night you went was horrible. Only someone who has witnessed it can possibly understand. It was the most traumatic event I hope to ever experience, yet I wouldn't have changed it for the world. I begged God to take your pain away, yet begged Him not to take you from me. My soul was forever changed that night. You blessed me with an incredible brother who was my backbone, my bodyguard, my best friend. You must be so proud of how strong he was and how he held me up. You were so strong, Daddy. I'm sure it sound cliche by now, but nobody will ever understand unless they were there. You were your own man, the master of your fate and the captain of your soul until your last breath.
I managed to ensure that your last words to me were, "I love you too." Your granddaughters were brave, too. I hope you saw how our little Bear hugged you, kissed you, held your hand and covered you in sparkles so the angels could find you. She loves you more than you ever knew, Daddy. Yesterday I asked them what they love most about you and she said she loves how silly you are. Kate loves how you sing with them. They still sing your songs. Yes, I'll make sure they always do. Lauryn sometimes walks around singing, "bushel and a peck" for half an hour straight. They are so strong. Stronger than me.
Sometimes I think I'm doing okay because you loved me so well and so deeply that I have enough love to last a lifetime. Then I have days, like today, when I think that I've just been so busy that I haven't fully grasped what the rest of my life will be like without you. I have good substitutes, but my days are so lonely without you to call. Nobody cares like you did. Even though I know I am loved, the world is so empty when someone who loved you from your first breath has taken their last. I carry your love for me in my heart, but it's still gone. It's no longer tangible. You are a memory now. That's what hit me the other day-walking out to the mailbox- my Daddy, so real just weeks ago, is now just a memory. The memory of you takes my breath away, but everyone else has to keep breathing.
Uncle B said he dreams about you. John did too. I told them I didn't want to dream about you and so, of course, that night I dreamed about you. It was Christmas. You were there the whole time, standing by the tree, opening presents with us (you were silent, I later realized). I left to go somewhere and remembered that I had been to your funeral. Suddenly I wondered if I was crazy. If anyone else had seen you. It had been so natural to me that you were there, but I was scared to ask John if you were really there because I was afraid he would think I was crazy or tell me that I had imagined it. Maybe I hadn't really been to your funeral. I drove around trying to decide if I should go back to see if you were still there. Then I woke up. I don't mean to make you feel bad, but I dread Christmas now. Oh my goodness, how you loved that holiday. You loved giving gifts and you were worse than a child at keeping secrets. I just can't imagine finding the same joy from now on that I had when you were here.
Daddy, I miss you so much. I love you so much. No illness, no death, can take that love away. What is love without an outlet, Daddy? What do I do with it? It's not a love that I can give anyone else- it's only for my Daddy. Thank you for teaching me how to love.
A day with the Lord is like a thousand years and a thousand years is like a day. I'll see you in a day or so, Daddy.
Yesterday was one month since you left. The impact that it had on me caught me off guard. I'm not really one for anniversaries. Dates don't really bear a lot of weight- they're just a day like any other. I don't usually feel more pain or joy on an anniversary than I do on any other day. This one is different, though. I think because it forced me to face the fact that time has continued to pass, even though I feel like it has been standing still.
You probably know this from where you sit now, but everything is okay. The night you went was horrible. Only someone who has witnessed it can possibly understand. It was the most traumatic event I hope to ever experience, yet I wouldn't have changed it for the world. I begged God to take your pain away, yet begged Him not to take you from me. My soul was forever changed that night. You blessed me with an incredible brother who was my backbone, my bodyguard, my best friend. You must be so proud of how strong he was and how he held me up. You were so strong, Daddy. I'm sure it sound cliche by now, but nobody will ever understand unless they were there. You were your own man, the master of your fate and the captain of your soul until your last breath.
I managed to ensure that your last words to me were, "I love you too." Your granddaughters were brave, too. I hope you saw how our little Bear hugged you, kissed you, held your hand and covered you in sparkles so the angels could find you. She loves you more than you ever knew, Daddy. Yesterday I asked them what they love most about you and she said she loves how silly you are. Kate loves how you sing with them. They still sing your songs. Yes, I'll make sure they always do. Lauryn sometimes walks around singing, "bushel and a peck" for half an hour straight. They are so strong. Stronger than me.
Sometimes I think I'm doing okay because you loved me so well and so deeply that I have enough love to last a lifetime. Then I have days, like today, when I think that I've just been so busy that I haven't fully grasped what the rest of my life will be like without you. I have good substitutes, but my days are so lonely without you to call. Nobody cares like you did. Even though I know I am loved, the world is so empty when someone who loved you from your first breath has taken their last. I carry your love for me in my heart, but it's still gone. It's no longer tangible. You are a memory now. That's what hit me the other day-walking out to the mailbox- my Daddy, so real just weeks ago, is now just a memory. The memory of you takes my breath away, but everyone else has to keep breathing.
Uncle B said he dreams about you. John did too. I told them I didn't want to dream about you and so, of course, that night I dreamed about you. It was Christmas. You were there the whole time, standing by the tree, opening presents with us (you were silent, I later realized). I left to go somewhere and remembered that I had been to your funeral. Suddenly I wondered if I was crazy. If anyone else had seen you. It had been so natural to me that you were there, but I was scared to ask John if you were really there because I was afraid he would think I was crazy or tell me that I had imagined it. Maybe I hadn't really been to your funeral. I drove around trying to decide if I should go back to see if you were still there. Then I woke up. I don't mean to make you feel bad, but I dread Christmas now. Oh my goodness, how you loved that holiday. You loved giving gifts and you were worse than a child at keeping secrets. I just can't imagine finding the same joy from now on that I had when you were here.
Daddy, I miss you so much. I love you so much. No illness, no death, can take that love away. What is love without an outlet, Daddy? What do I do with it? It's not a love that I can give anyone else- it's only for my Daddy. Thank you for teaching me how to love.
A day with the Lord is like a thousand years and a thousand years is like a day. I'll see you in a day or so, Daddy.
Wednesday, September 5, 2012
Goodbye
Dear Daddy,
I think this will be the last letter I write you while you're in this life with me. I've known for nine months now that this day would come. I knew I wanted your words to keep with me after you were gone. I knew we wouldn't want to leave anything unsaid. But I always thought I would have one more chance. A warning. I thought I would know when it was time to ask you to write me one more letter. I thought I would know when you set foot in my house for the last time. I thought I would remember the last time I heard your laugh, heard your voice before it was weak and faded. When you kissed my babies goodbye before your trip to heaven. I thought we would have a chance to sit down and talk about your decision to come home. We would cry together and talk about how brave you've been and then you could gently go home. I thought I would know.
You grew weaker over the last month. I knew when they told you to start using a walker that it was getting closer. Last month we had such a good time at lunch. We sat outside at your favorite mexican restaurant and talked for hours. Then for our last lunch on the 21st we went to the chinese place. You were so weak, but your spirits were reignited because of the drop in your CA-19-9 numbers. But you were changing. It was like you were out of subjects. Disconnected. So, you took your chemo that day, but you didn't bounce back like you usually do. Every day that I called, you were feeling worse than the previous day. I wanted to have hope, Daddy, I really did. I tried so hard, but I just couldn't. Then you fell. The first time was Wednesday. Mom must've been so scared. You didn't want her to call anyone. I understood. You knew if you went to the hospital that you wouldn't make it out. I thought originally that it was just a cancer fear, but now I think that your body knew your soul was leaving- and you just didn't want to quit fighting. Then Friday you got out of bed by yourself and couldn't get up. She had to call the paramedics to get you off the floor and you were so mad. You wanted to come over to my house so badly Saturday so you could be with all of us. I should've known you wouldn't be able to come, but I really thought I would have you there one more time. We came over to see you Sunday. You made me go through the safe with you and look at important papers. We talked about how they would probably put you in the hospital for another plasma transfusion on Tuesday. I wondered if any transfusion could renew the spirit you had lost. Then Monday came. You couldn't get off the couch. We just couldn't wait for help anymore, Daddy. We were scared, so the ambulance took you to the hospital. You started fading there. You were tired and you seemed like you were confused. They told us that you didn't have any infections, so they were trying to find a diagnosis in order to admit you. I felt like screaming, "as if liver cancer isn't a diagnosis?" They finally took you upstairs where they told us you had infections. Then they said you didn't, then they said it was kidney failure, then it wasn't. On and on we went with them while you kept fading. I knew Monday night. I knew I needed to let go- that you needed to let go.
I finally had the courage to ask Lynn what cancer markers really meant. Every week for nine months I've wondered how high they would get before you died. She told me that she has never seen anyone alive with numbers as high as yours. Ever. I wondered how we could be so naive. Especially since your numbers were even higher last month when you were still with us. Then I just got so proud. So very, very proud of you. You are stronger than any patient she has ever seen in her career. She told us that she thought you needed to come home and rest.
I felt like you needed to know that you were the toughest patient they've ever had, so I told you. You woke up enough to look at me and say, "really?" I think you told me you had to think about it. I told you that you were tough enough to keep fighting if you wanted to, but that if you were too tired to fight anymore then you could sleep because you already won. You told me you were just to tired. I asked you to tell me one more story about you and me. Of course you told me how much you loved our Saturday morning dances. And oh, Daddy, I did too. Dancing with you made me who I am. I just want to beg you not to go, Daddy. Why didn't I dance with you one more time, Daddy?
This morning you woke up enough to hear the doctor tell you that he could keep giving you IV antibiotics for a few more days so that maybe you would wake up a little. Be more aware. More aware of what? So you and Mom talked and you told us you just wanted to go home. Here we were, exactly where I knew you wanted to be, and I panicked, Daddy. I got so scared that you were giving up because you thought WE didn't want to fight anymore. God, I hope you didn't think that. I told you over and over that we could keep fighting, but you're just so tired, Daddy. You're just not in there anymore. Did I want you to give up for ME, or for you? I feel so guilty, Daddy. You know I would fight with you until the end, right? I've fought with you every week, Daddy, I wouldn't give up now, but we just can't make it any better. I'm so sorry, Daddy. So sorry that I couldn't will you to be better, that I couldn't cause a miracle to happen. I'm sorry I listened to you when you said not to come to the last chemo appointment- even though they wouldn't let you have chemo. Why did I listen to you??!! Why didn't I listen to my heart?? I could have had one more lunch with you, Daddy, and I don't think I'll ever forgive myself for that. Did you know that was the last one, Daddy? If I let myself start thinking about all of the things I regret I don't think I can go on.
Here we are now. At home like you wanted to be. You won't take your medicine. You won't really wake up anymore. It hurts so much, Daddy. I'm trying to remember that last normal conversation I had with you and I can't right now. I miss you so much, Daddy. I want you here, but you're not really here, so then I start thinking you should go. What good is this now, Daddy? If I didn't already ask you, it's too late. Last chemo you told me to ask you anything I wanted. I really couldn't think of much because we've talked so much, but I asked you to tell me more about your childhood. How could you leave so quickly, Daddy? I'm not ready. I'm not ready for you to leave.
I left very early in the morning to get here Tuesday. It was so dark and foggy. I looked ahead and the road actually looked scary. I couldn't even see the road in front of me. Sometimes I would go down a hill and fog would actually surround me, but I kept going. Then I realized that the road was just like my life now. It's so very dark and scary, and I really just want to stop the car, but I know the road is still there even when I can't see it, so I keep driving. I kept driving to you, Daddy, just like I'll keep walking through life to get to you in Heaven. This morning it was a little lighter. Still foggy, but the sun was rising. I wondered if God was trying to teach me something. Trying to tell me that the sun would rise again and my fog will lift some day.
Oh, Daddy. Thank you. Thank you for being everything to me. Thank you for playing hide-and-go-seek with me on rainy days, for letting me be silly or sad, for pulling on my ponytails, for buying me a puppy, for letting me be myself, for pretending to be my angry boyfriend when I was being bullied, for always forgiving me, for always loving me. Thank you for showing us how to fight bravely, Daddy. My babies will always know how hard you fought to be their Papa. God help me, I'm going to miss you so much, Daddy. I'm so proud you were mine, and I'm so proud I'm yours. I won't be as scared to die now because I know my Daddy's waiting for me. Now sleep, Daddy. Please go home so you won't hurt anymore. It's time now, Daddy. It's going to be okay. I love you Daddy, always and forever.
I think this will be the last letter I write you while you're in this life with me. I've known for nine months now that this day would come. I knew I wanted your words to keep with me after you were gone. I knew we wouldn't want to leave anything unsaid. But I always thought I would have one more chance. A warning. I thought I would know when it was time to ask you to write me one more letter. I thought I would know when you set foot in my house for the last time. I thought I would remember the last time I heard your laugh, heard your voice before it was weak and faded. When you kissed my babies goodbye before your trip to heaven. I thought we would have a chance to sit down and talk about your decision to come home. We would cry together and talk about how brave you've been and then you could gently go home. I thought I would know.
You grew weaker over the last month. I knew when they told you to start using a walker that it was getting closer. Last month we had such a good time at lunch. We sat outside at your favorite mexican restaurant and talked for hours. Then for our last lunch on the 21st we went to the chinese place. You were so weak, but your spirits were reignited because of the drop in your CA-19-9 numbers. But you were changing. It was like you were out of subjects. Disconnected. So, you took your chemo that day, but you didn't bounce back like you usually do. Every day that I called, you were feeling worse than the previous day. I wanted to have hope, Daddy, I really did. I tried so hard, but I just couldn't. Then you fell. The first time was Wednesday. Mom must've been so scared. You didn't want her to call anyone. I understood. You knew if you went to the hospital that you wouldn't make it out. I thought originally that it was just a cancer fear, but now I think that your body knew your soul was leaving- and you just didn't want to quit fighting. Then Friday you got out of bed by yourself and couldn't get up. She had to call the paramedics to get you off the floor and you were so mad. You wanted to come over to my house so badly Saturday so you could be with all of us. I should've known you wouldn't be able to come, but I really thought I would have you there one more time. We came over to see you Sunday. You made me go through the safe with you and look at important papers. We talked about how they would probably put you in the hospital for another plasma transfusion on Tuesday. I wondered if any transfusion could renew the spirit you had lost. Then Monday came. You couldn't get off the couch. We just couldn't wait for help anymore, Daddy. We were scared, so the ambulance took you to the hospital. You started fading there. You were tired and you seemed like you were confused. They told us that you didn't have any infections, so they were trying to find a diagnosis in order to admit you. I felt like screaming, "as if liver cancer isn't a diagnosis?" They finally took you upstairs where they told us you had infections. Then they said you didn't, then they said it was kidney failure, then it wasn't. On and on we went with them while you kept fading. I knew Monday night. I knew I needed to let go- that you needed to let go.
I finally had the courage to ask Lynn what cancer markers really meant. Every week for nine months I've wondered how high they would get before you died. She told me that she has never seen anyone alive with numbers as high as yours. Ever. I wondered how we could be so naive. Especially since your numbers were even higher last month when you were still with us. Then I just got so proud. So very, very proud of you. You are stronger than any patient she has ever seen in her career. She told us that she thought you needed to come home and rest.
I felt like you needed to know that you were the toughest patient they've ever had, so I told you. You woke up enough to look at me and say, "really?" I think you told me you had to think about it. I told you that you were tough enough to keep fighting if you wanted to, but that if you were too tired to fight anymore then you could sleep because you already won. You told me you were just to tired. I asked you to tell me one more story about you and me. Of course you told me how much you loved our Saturday morning dances. And oh, Daddy, I did too. Dancing with you made me who I am. I just want to beg you not to go, Daddy. Why didn't I dance with you one more time, Daddy? 
This morning you woke up enough to hear the doctor tell you that he could keep giving you IV antibiotics for a few more days so that maybe you would wake up a little. Be more aware. More aware of what? So you and Mom talked and you told us you just wanted to go home. Here we were, exactly where I knew you wanted to be, and I panicked, Daddy. I got so scared that you were giving up because you thought WE didn't want to fight anymore. God, I hope you didn't think that. I told you over and over that we could keep fighting, but you're just so tired, Daddy. You're just not in there anymore. Did I want you to give up for ME, or for you? I feel so guilty, Daddy. You know I would fight with you until the end, right? I've fought with you every week, Daddy, I wouldn't give up now, but we just can't make it any better. I'm so sorry, Daddy. So sorry that I couldn't will you to be better, that I couldn't cause a miracle to happen. I'm sorry I listened to you when you said not to come to the last chemo appointment- even though they wouldn't let you have chemo. Why did I listen to you??!! Why didn't I listen to my heart?? I could have had one more lunch with you, Daddy, and I don't think I'll ever forgive myself for that. Did you know that was the last one, Daddy? If I let myself start thinking about all of the things I regret I don't think I can go on.
I left very early in the morning to get here Tuesday. It was so dark and foggy. I looked ahead and the road actually looked scary. I couldn't even see the road in front of me. Sometimes I would go down a hill and fog would actually surround me, but I kept going. Then I realized that the road was just like my life now. It's so very dark and scary, and I really just want to stop the car, but I know the road is still there even when I can't see it, so I keep driving. I kept driving to you, Daddy, just like I'll keep walking through life to get to you in Heaven. This morning it was a little lighter. Still foggy, but the sun was rising. I wondered if God was trying to teach me something. Trying to tell me that the sun would rise again and my fog will lift some day.
Oh, Daddy. Thank you. Thank you for being everything to me. Thank you for playing hide-and-go-seek with me on rainy days, for letting me be silly or sad, for pulling on my ponytails, for buying me a puppy, for letting me be myself, for pretending to be my angry boyfriend when I was being bullied, for always forgiving me, for always loving me. Thank you for showing us how to fight bravely, Daddy. My babies will always know how hard you fought to be their Papa. God help me, I'm going to miss you so much, Daddy. I'm so proud you were mine, and I'm so proud I'm yours. I won't be as scared to die now because I know my Daddy's waiting for me. Now sleep, Daddy. Please go home so you won't hurt anymore. It's time now, Daddy. It's going to be okay. I love you Daddy, always and forever.
Tuesday, August 21, 2012
Inevitable
Dear Daddy,
I can't sleep. I keep watching stupid MTV trying to avoid the thoughts that are burning holes in my brain, so I decided redesigning the blog would get my mind off of them. As you can tell, neither effort was successful.
You and I keep talking about how we haven't written in so long. Not surprisingly, we're on the same page. When we write, we go to the deepest part of heart and soul. We can't stop ourselves from admitting the truth. For months now, we wanted just to live, which meant closing that part of ourselves for a while. It's not that we are in denial of our reality- quite the opposite, actually. We are so keenly aware of our reality that we needed NOT to write about it for a while. We needed just to be in the moment without looking back. Sometimes that moment was laying on the beach watching the babies play. Sometimes that moment was laying in a hospital bed watching the seconds slowly pass. Can either moment ever really be put into words anyway?
I wonder if you'll think it's strange that I felt compelled to write on a day that brought such unexpectedly good news. I don't know if your doc had ever seen cancer markers decrease that drastically in someone with your cancer in it's current stage. What an amazing sense of joy overcame me. The thing is, though, it doesn't take one bit of the pain away. I don't mean to sound selfish- I am so grateful to God for what He is doing for you. I just don't know if I can feel joy the way I used to.
We were talking today about how your victories change when you have cancer. We heard the story of the woman who was overjoyed that she didn't have the "mutant gene." O joy of joys, I only have the REGULAR cancer gene! But I get it. Don't you? That was her victory. Amazing, isn't it, that God can help us find victory in our pain? Nonetheless, I gave up my hope a while ago. I've told you before that I don't mean that in a hopeless or defeatist sense like it may sound. I am simply at peace with my hopelessness. I don't waste my time "hoping" for anything. I simply accept what today brings as either wonderful or crappy and I try to roll with it. That works well as long as the people around you accept that. When they don't, it can get painful and frustrating. I shared the news with such joy, but here I am tonight and you still have the damn cancer. Am I joyful that the chemo is giving us more time to enjoy, or am I bitter that I have to resort to living my life in '3 on, 1 off' cycles of uncertainty and fear? I guess I can be both. I am both.
We didn't finish talking today about what it's like to remember life before cancer. I realized that I haven't even thought about it in months. Isn't that a strange feeling? Nobody could have explained to me how that would happen. I know that's what people mean by 'the new normal,' but I'm not getting comfortable here because 'normal' is just an illusion. We have to be prepared now for constant change. Doesn't that just wear you out some days? I do not let myself visit the past, which is a shame because there's so much joy there. Then again, the joy is exactly why I don't visit. Someday I hope that will change.
With J's Mom and her injury, K's big change, going back to work and thinking about cancer, I've been feeling like I'm going to implode. That is not to say that I don't realize how many people have much bigger battles that me. I find myself thanking God so much more for all of the wonderful things with which He has blessed me. That just doesn't erase my personal pain tonight.
I meant what I said today. When I woke up this morning, the very first thing that popped into my head was how incredibly brave you are. When I say you have surprised me, that doesn't mean that I DIDN'T think you were strong before this. It just means that a different person has emerged from within you. One who we never knew existed. He has all of the fortitude and attitude of my old Daddy, but the new one has this strength- this fight and stuborness that the old one didn't need. You are just amazing. Remember, though, Daddy- you don't have to do anything for anyone but yourself. If doing it "for us" makes you stronger then that's okay, but you'll never hear me tell you what to do. You are still the master of your fate. Well, you and The Master. He's really the only one whose opinion counts. I love you so very, very much.
I can't sleep. I keep watching stupid MTV trying to avoid the thoughts that are burning holes in my brain, so I decided redesigning the blog would get my mind off of them. As you can tell, neither effort was successful.
You and I keep talking about how we haven't written in so long. Not surprisingly, we're on the same page. When we write, we go to the deepest part of heart and soul. We can't stop ourselves from admitting the truth. For months now, we wanted just to live, which meant closing that part of ourselves for a while. It's not that we are in denial of our reality- quite the opposite, actually. We are so keenly aware of our reality that we needed NOT to write about it for a while. We needed just to be in the moment without looking back. Sometimes that moment was laying on the beach watching the babies play. Sometimes that moment was laying in a hospital bed watching the seconds slowly pass. Can either moment ever really be put into words anyway?
I wonder if you'll think it's strange that I felt compelled to write on a day that brought such unexpectedly good news. I don't know if your doc had ever seen cancer markers decrease that drastically in someone with your cancer in it's current stage. What an amazing sense of joy overcame me. The thing is, though, it doesn't take one bit of the pain away. I don't mean to sound selfish- I am so grateful to God for what He is doing for you. I just don't know if I can feel joy the way I used to.We were talking today about how your victories change when you have cancer. We heard the story of the woman who was overjoyed that she didn't have the "mutant gene." O joy of joys, I only have the REGULAR cancer gene! But I get it. Don't you? That was her victory. Amazing, isn't it, that God can help us find victory in our pain? Nonetheless, I gave up my hope a while ago. I've told you before that I don't mean that in a hopeless or defeatist sense like it may sound. I am simply at peace with my hopelessness. I don't waste my time "hoping" for anything. I simply accept what today brings as either wonderful or crappy and I try to roll with it. That works well as long as the people around you accept that. When they don't, it can get painful and frustrating. I shared the news with such joy, but here I am tonight and you still have the damn cancer. Am I joyful that the chemo is giving us more time to enjoy, or am I bitter that I have to resort to living my life in '3 on, 1 off' cycles of uncertainty and fear? I guess I can be both. I am both.
We didn't finish talking today about what it's like to remember life before cancer. I realized that I haven't even thought about it in months. Isn't that a strange feeling? Nobody could have explained to me how that would happen. I know that's what people mean by 'the new normal,' but I'm not getting comfortable here because 'normal' is just an illusion. We have to be prepared now for constant change. Doesn't that just wear you out some days? I do not let myself visit the past, which is a shame because there's so much joy there. Then again, the joy is exactly why I don't visit. Someday I hope that will change.
With J's Mom and her injury, K's big change, going back to work and thinking about cancer, I've been feeling like I'm going to implode. That is not to say that I don't realize how many people have much bigger battles that me. I find myself thanking God so much more for all of the wonderful things with which He has blessed me. That just doesn't erase my personal pain tonight.
I meant what I said today. When I woke up this morning, the very first thing that popped into my head was how incredibly brave you are. When I say you have surprised me, that doesn't mean that I DIDN'T think you were strong before this. It just means that a different person has emerged from within you. One who we never knew existed. He has all of the fortitude and attitude of my old Daddy, but the new one has this strength- this fight and stuborness that the old one didn't need. You are just amazing. Remember, though, Daddy- you don't have to do anything for anyone but yourself. If doing it "for us" makes you stronger then that's okay, but you'll never hear me tell you what to do. You are still the master of your fate. Well, you and The Master. He's really the only one whose opinion counts. I love you so very, very much.
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