I went back today and ready every single blog post. Heavyyyy. Ugh. Sorry about that. It was kind of creepy, actually. All of these things that I wrote to Daddy about his cancer- I had forgotten that I had even said them- and now I'm repeating them about my own cancer. I even mentioned the song that is now one of my favorites- Martina McBride's, "I'm gonna love you through it." It seriously made me mad. Like I'm experiencing some kind of divine test- or joke. I know that my job is to show my girls how this is supposed to be done, just like Daddy showed me. I know I can do it, but ya'll. . I really don't want to.
Most of my friends know that what I need most is to laugh. To stay busy with other things besides cancer. Maybe do a couple things that are bad for me and say, "WHAT? Afraid I might get cancer or something?" When one of them complains about something, I like to make them uncomfortable by saying, "trade ya'," or "well, I have a tumor." I told someone last night that I was going to milk that part while I can since someday I won't be able to. ;-) Then I laughed because I said, "milk it," and pretty soon I won't have any boobs with which to milk anyone. The great part about all of that, though, ('that' being cancer, I guess) is that cancer makes everything else seem so freaking AWESOME.
My job was awesome before, but now it's a vacation for me. Somewhere where nobody even knows I'm sick. Somewhere I can be anyone I want to be. Somewhere where I don't have the time to cry. It's so awesome.
My friends are awesome. I've never been one to have a ton of friends. I prefer just a few close ones who really, truly know me. It took me a long time to find that, but I have it now and it is amazing. And I consider every single one of you who takes the time to read this a friend. My friends have touched my heart and made me feel so unworthy of the love they're giving me. Every message, every call, every hug- I am so, so grateful for each of them- and each of you.
My girls are so awesome. Last night they were driving each other nuts in the car and I laughed out loud at them. How awesome that they think that someones knee touching their carseat is the worst thing that has happened this week! It's already like they've forgotten that I'm sick. Of course they can't see it yet, but it gives me hope that they'll brush this off and move on. At the same time, I hope that I can teach them something they'll remember along the way.
My husband is awesome. He's been folding laundry and packing lunches. And when I tell him that my back hurts and I think it must be another tumor, he tells me it's just stress. When I tell him that I'm going to look like a freak, he tells me he didn't marry me for my boobs, that he's really more of a butt man, and that I would never look like a freak.
Exercise is so awesome. I cried in the gym this morning. You see, I've battled my weight since I was a teenager. I've lost more weight and gained it back than I can even count. I hated sweating with a passion- and I used to tell people that I would only run if I was being chased. Two years ago when J was put on blood pressure medication we decided we needed to do something. We started a fitness journey together that changed our lives. I've done things in the last two years that I NEVER thought I would make my body do. I lost 40 pounds, ran in races and began to love sweating.The gym became my second home, and I was so proud of it. I have these fleeting thoughts now that maybe I'm being punished for caring so much about something so cosmetic. On the other hand, if I weren't so strong now, I wouldn't have as much muscle to fight this bi*ch with. That's what made me cry in the gym, though. I'm going to miss it so much. And I'm afraid I'll get fat again. There, I said it. I'm afraid I'm going to be bald and fat with no boobs. Yes, I KNOW I have bigger things to worry about. Yes, I KNOW I'm fighting death. But I would rather not be bald, fat and boobless while I'm doing it. And before you say it, yes I KNOW it's only temporary and I'll get through it. That does not make it any more appealing.
Here's what I've learned that I didn't know- and you probably don't either. They have this thing called "immediate reconstruction," except that it's not really immediate. The only immediate thing is that they put, essentially, balloons in where your boobs were. They blow them up weekly to stretch your skin until you're ready for implants. In the meantime they look all lopsided and uneven. And here's the great part. Apparently, if you need chemo, "immediate reconstruction" isn't even an option. That means I would have NOTHING for several months. NOTHING. How will I even LOOK at that? Isn't that insanely vain? I know it is, but I can't help it right now because I know it's going to be a long time before I will look like something even CLOSE to normal. I am telling myself, even as I write this, that after I get through that, getting ANYthing in there will look and feel awesome for me and I'll never take my body for granted again. See, I really am trying hard to put an upside to every down.
I feel like I have to say this every time. I know that even though cancer sucks, I'm a very lucky woman. There are so many people out there with no hope for themselves or, worse yet, for their babies (by the way, September is Childhood Cancer Awareness Month- talk about a vicious monster). I never want to discount what they're experiencing or compare my pain to theirs. The fact remains, though, that however big or small our battle, our pain is our pain. Thinking about other people's battles can give us important perspective, but it doesn't fix OUR battle. I'm kind of just figuring that out. So when you say you have a cold and I say, "wanna trade?" it doesn't mean that having a cold doesn't still suck.
I named my tumor. Betty. Betty the Bi*ch, actually. Sorry for the language, but she is kind of a bi*ch. And now, even though I know she's only, like, 1 centimeter, she feels like she's the size of my fist. That's kind of a bi*chy thing to do if you ask me. And what kind of bi*ch sets up camp in your body without asking and then, when you evict her, takes your freaking boobs with her? So you see, I think the name fits. It helps me stay mad at her as I sit here and DREAD- I mean full on sweating, heart pounding, can't eat (which is RARE for me)- DREAD tomorrow. Are they going to tell me more unexpected things? Are they going to repeatedly shake their heads when I say, for the 10th time, "YES, I'm 34 and NO there is absolutely no history of breast cancer in my family. Ever. Anywhere. Nobody." Well, my girls will have a much different answer, won't they. I'm praying that the advances in medicine are so great over the next decade that they won't have to fear it as much as we do. But right now it just reiterates what I'm already feeling. I'm 34 and I have a disease that nobody I know has ever had. They even told me not to bother calling the American Cancer Society support hotline because most of the women are retirees and "probably wouldn't be able to relate to my situation." But I know there are more "me's" out there, and I'm going to find them. As soon as this bi*ch hits the road.
Showing posts with label tumor. Show all posts
Showing posts with label tumor. Show all posts
Tuesday, September 3, 2013
Monday, September 2, 2013
365 days
Well, Daddy, this is one letter I never pictured writing. Actually, I had avoided writing anything at all since you left. I like to come back and read your letters, and I kept telling myself that I should tell you about all of the ways the girls remember you. They look out the window and wave at the sky in the morning to tell you hello. When we had a picnic last week, the little ones did their new dance while they looked at the sky and said they were "showing Papa because he likes our dances." L calls you on her "phone" all the time to talk about the games you used to be able to play with her. K is so quiet. I can't get her to say much about you, but I know that's how she protects herself from her sadness.
This week you have been gone one year. 365 days without touching you or seeing your face. 365 days with no cancer in our lives. 365 days of stories that I didn't get to tell you. 365 days of memories you missed out on. 365 days to start to heal.
Then I went to the doctor.
In the midst of this story, let me tell you about all of the amazing ways you played a part. I dream about you pretty frequently. I get frustrated because you are always sick in my dreams. They are so realistic that I can't enjoy seeing and touching you again. A few months ago, I had 3 dreams in the course of about 2 months in which you and I both had cancer. One time I specifically remember telling you that I didn't want to die, and you told me that I wouldn't, but I didn't believe you. Finally, after the third dream and reading a story about a young mother who died of cancer at 38, I decided I must go to the doctor- just to make myself feel better.
I haven't been to the doctor in three years. It's easy to tell me how stupid that was- you're right. But I had just had a baby, so I figured I was good for a year. Then you got sick and I cancelled it last summer because I was too busy, and I figured it had only been two years. Then the dreams came, and I realized it had been three years, so I got the message- from you, the universe, God, whoever- and made an appointment in late June.
I went in on that day two weeks ago without even a second thought. I was excited to see my midwife, whom I hadn't seen since L was born. We talked about the girls, you, vacations, just life. And then she stopped and looked in my eyes and said, "do you feel that?" I realized that she kept touching the same spot. And I did feel it. She said, "It's probably nothing, but I am concerned enough that I want you to get it checked." I think I asked her if she was kidding. She wasn't.
While I waited for the next appointment, it was other people's concern that got me worried. I kept telling myself that we were all overreacting and we were going to feel so stupid when it was nothing. So we went to the follow-up- just to make ourselves feel better.
When you were sick and they made us go to that awful family meeting, I had this overwhelming urge to grab your hand and run. Just run. Because if they couldn't tell us, then we didn't have to know. We could just live. I felt that again as I was walking into the clinic. I felt the need to just run. If I didn't go, they couldn't tell me anything. After all, I've never been this healthy in my life so I'm probably just going through all of this expensive bullshit for nothing anyway.
Of course I didn't run. I didn't even run when they told me they needed "more pictures." I didn't run when they wouldn't say anything to me. I didn't run when they brought us into the quiet room with watercolor paintings and kleenex on the table. I didn't run when two doctors came in instead of one. I didn't run when they gave me a 50/50 chance of cancer. I didn't even run when they told me I had to come back right away for more tests. After all, I knew I was going to feel stupid when it was nothing. So I would go back for more tests- just to make myself feel better.
They did the tests and wouldn't tell me anything. They spoke in generalities and hypotheticals which made me so angry. They told me to sit and wait. Maybe 2 days, maybe 7, who knows. I asked them to call me as soon as they knew. I told them I was prepared.
I wasn't prepared.
They called at 1:20 on August 28th. My midwife was out, so someone else had to call. "Angela, are you at work?"
"Yes, but it's okay."
"Angela, are you alone?"
"Yes, but I'm okay."
"I'm so sorry, but it looks like you have cancer. It's what's called Invasive Ductal Carcinoma. We think it's a Stage 2. I'm sorry, but I'm not an expert so I can't really tell you more than that right now. The doctor can call you later. I'm so sorry."
I cried until I realized that she was just going to sit on the phone feeling sorry for me until I quit. So I quit long enough to convince her I was fine. I was thankful to have a sound proof office. On the way home, I found a friend who fought through the same thing two years ago. She let me ask anything I wanted. All I could think was, "what's going to be the worst part?"
"Pretty much everything for the next year is going to suck."
But I could look at her and see that there is an end. Or a new beginning. Or both. Someday maybe I would have trouble remembering this moment and the horrible depth of fear I was feeling.
The doctor called while I was on my way home to tell me that I could expect a mastectomy and probably four rounds of chemo. And I should know I would lose my hair. Thanks- I hadn't figured that one out already.
I drove really slowly because I wanted J to have as much time as possible living in normalcy before I told him. I thought about staying away for hours so he could be mad at me for being late instead of having to think about what was actually happening to our life. I remember walking into the house and the girls running up to me screaming and grabbing my legs like any other day. I felt so guilty for what they are undoubtedly going to see and experience over the next two years. Then I saw him, and all I had to do was nod my head.
It was a very long night.
I waited a few days to talk to the girls and to Mom. As soon as I asked the girls if they had heard of cancer, Claire said, "that's what Papa had." I explained to them that you can get cancer anywhere, and that not everyone dies. I tried to laugh about what was going to happen to my body so that they wouldn't be scared. They were still scared. The little girls kept asking me if I was going to die and go to heaven. They don't want me to leave them to go to the hospital. They don't want people to see me "with no hair on." But we got through that together. And you would be so happy to see how amazing your son has been. He is there for me every step of the way- taking care of Mom and me. He's brave and strong- just like you.
You know, Daddy, many people have mentioned how sad it is that this is the one year anniversary of you leaving, but to me it's not all sad. I was so scared, so angry when I found out, but I was also ready to fight. I saw you fight more valiantly than any person could imagine. You fought a monster that you could NOT beat- just to show me how it was done. You taught me how to do this, Daddy. You gave me a reason not to have a pity party- because I have a monster that I CAN beat. Remember that day we walked into the chemo room for the first time and we were horrified and scared to death? Well, I've been there with you, so when I do it this time, the monster has a name and I know the end game. Do you see, Daddy? I know why you had to go now. You had to prepare me for this fight. And even in my really, really dark moments when I think about the what-ifs, I am less scared because I know that my Daddy is there waiting for me.
Wednesday I will spend all day in the hospital. I have gained a new appreciation for what you must have experienced. I feel like a science experiment. All of the questions and the tests and the needles. I'll feel mad and scared and sick- and I'll feel like I really want to run away. But then it will be over and I'll go home and try to be Angela again and not the 34-year-old science experiment with a random case of cancer.
So thank you, Daddy. Thank you for showing me what to do. Thank you for holding my hand- in life and in death. I want you to know that God has blessed me with some seriously AMAZING people who will hold my hand now that you can't.
http://www.youtube.com/watch?v=4ufq8iMYvL0
This week you have been gone one year. 365 days without touching you or seeing your face. 365 days with no cancer in our lives. 365 days of stories that I didn't get to tell you. 365 days of memories you missed out on. 365 days to start to heal.
Then I went to the doctor.
In the midst of this story, let me tell you about all of the amazing ways you played a part. I dream about you pretty frequently. I get frustrated because you are always sick in my dreams. They are so realistic that I can't enjoy seeing and touching you again. A few months ago, I had 3 dreams in the course of about 2 months in which you and I both had cancer. One time I specifically remember telling you that I didn't want to die, and you told me that I wouldn't, but I didn't believe you. Finally, after the third dream and reading a story about a young mother who died of cancer at 38, I decided I must go to the doctor- just to make myself feel better.
I haven't been to the doctor in three years. It's easy to tell me how stupid that was- you're right. But I had just had a baby, so I figured I was good for a year. Then you got sick and I cancelled it last summer because I was too busy, and I figured it had only been two years. Then the dreams came, and I realized it had been three years, so I got the message- from you, the universe, God, whoever- and made an appointment in late June.
I went in on that day two weeks ago without even a second thought. I was excited to see my midwife, whom I hadn't seen since L was born. We talked about the girls, you, vacations, just life. And then she stopped and looked in my eyes and said, "do you feel that?" I realized that she kept touching the same spot. And I did feel it. She said, "It's probably nothing, but I am concerned enough that I want you to get it checked." I think I asked her if she was kidding. She wasn't.
While I waited for the next appointment, it was other people's concern that got me worried. I kept telling myself that we were all overreacting and we were going to feel so stupid when it was nothing. So we went to the follow-up- just to make ourselves feel better.
When you were sick and they made us go to that awful family meeting, I had this overwhelming urge to grab your hand and run. Just run. Because if they couldn't tell us, then we didn't have to know. We could just live. I felt that again as I was walking into the clinic. I felt the need to just run. If I didn't go, they couldn't tell me anything. After all, I've never been this healthy in my life so I'm probably just going through all of this expensive bullshit for nothing anyway.
Of course I didn't run. I didn't even run when they told me they needed "more pictures." I didn't run when they wouldn't say anything to me. I didn't run when they brought us into the quiet room with watercolor paintings and kleenex on the table. I didn't run when two doctors came in instead of one. I didn't run when they gave me a 50/50 chance of cancer. I didn't even run when they told me I had to come back right away for more tests. After all, I knew I was going to feel stupid when it was nothing. So I would go back for more tests- just to make myself feel better.
They did the tests and wouldn't tell me anything. They spoke in generalities and hypotheticals which made me so angry. They told me to sit and wait. Maybe 2 days, maybe 7, who knows. I asked them to call me as soon as they knew. I told them I was prepared.
I wasn't prepared.
They called at 1:20 on August 28th. My midwife was out, so someone else had to call. "Angela, are you at work?"
"Yes, but it's okay."
"Angela, are you alone?"
"Yes, but I'm okay."
"I'm so sorry, but it looks like you have cancer. It's what's called Invasive Ductal Carcinoma. We think it's a Stage 2. I'm sorry, but I'm not an expert so I can't really tell you more than that right now. The doctor can call you later. I'm so sorry."
I cried until I realized that she was just going to sit on the phone feeling sorry for me until I quit. So I quit long enough to convince her I was fine. I was thankful to have a sound proof office. On the way home, I found a friend who fought through the same thing two years ago. She let me ask anything I wanted. All I could think was, "what's going to be the worst part?"
"Pretty much everything for the next year is going to suck."
But I could look at her and see that there is an end. Or a new beginning. Or both. Someday maybe I would have trouble remembering this moment and the horrible depth of fear I was feeling.
The doctor called while I was on my way home to tell me that I could expect a mastectomy and probably four rounds of chemo. And I should know I would lose my hair. Thanks- I hadn't figured that one out already.
I drove really slowly because I wanted J to have as much time as possible living in normalcy before I told him. I thought about staying away for hours so he could be mad at me for being late instead of having to think about what was actually happening to our life. I remember walking into the house and the girls running up to me screaming and grabbing my legs like any other day. I felt so guilty for what they are undoubtedly going to see and experience over the next two years. Then I saw him, and all I had to do was nod my head.
It was a very long night.
I waited a few days to talk to the girls and to Mom. As soon as I asked the girls if they had heard of cancer, Claire said, "that's what Papa had." I explained to them that you can get cancer anywhere, and that not everyone dies. I tried to laugh about what was going to happen to my body so that they wouldn't be scared. They were still scared. The little girls kept asking me if I was going to die and go to heaven. They don't want me to leave them to go to the hospital. They don't want people to see me "with no hair on." But we got through that together. And you would be so happy to see how amazing your son has been. He is there for me every step of the way- taking care of Mom and me. He's brave and strong- just like you.
You know, Daddy, many people have mentioned how sad it is that this is the one year anniversary of you leaving, but to me it's not all sad. I was so scared, so angry when I found out, but I was also ready to fight. I saw you fight more valiantly than any person could imagine. You fought a monster that you could NOT beat- just to show me how it was done. You taught me how to do this, Daddy. You gave me a reason not to have a pity party- because I have a monster that I CAN beat. Remember that day we walked into the chemo room for the first time and we were horrified and scared to death? Well, I've been there with you, so when I do it this time, the monster has a name and I know the end game. Do you see, Daddy? I know why you had to go now. You had to prepare me for this fight. And even in my really, really dark moments when I think about the what-ifs, I am less scared because I know that my Daddy is there waiting for me.
Wednesday I will spend all day in the hospital. I have gained a new appreciation for what you must have experienced. I feel like a science experiment. All of the questions and the tests and the needles. I'll feel mad and scared and sick- and I'll feel like I really want to run away. But then it will be over and I'll go home and try to be Angela again and not the 34-year-old science experiment with a random case of cancer.
So thank you, Daddy. Thank you for showing me what to do. Thank you for holding my hand- in life and in death. I want you to know that God has blessed me with some seriously AMAZING people who will hold my hand now that you can't.
http://www.youtube.com/watch?v=4ufq8iMYvL0
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